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A friend asked me today what I think about what appears to be the imminent demise of the world’s largest for-profit genetic diagnostics company, about which I’ve written nothing whatsoever. Her question though got me thinking, because she referenced a paper I wrote with colleagues some years ago that is still among the most cited things I’ve ever done, which focuses on how the future of eugenics at the turn of the 21st century might take 20th century eugenics and turn it into a market force. Clearly, that future has begun to come true…but the question of how it might be tied to market forces – and what the implications will be – has taken a turn. While plenty of folks have asked about what happens if DNA is stolen or misappropriated, and made arguments about patenting of DNA or its ownership, the emerging question for the next year might be what it would mean to have inadvertently handed over DNA to a company that then puts that DNA – effectively – into the hands of organizations whose guardrails are basically non-existent. That’s pretty much what is going to keep me up at night for quite some time. Will it mean that there is an influence on who is born, or eugenics more generally? Let’s just say that the more products appear to provide for individuals to make choices about whom they would like to parent, the more dangerous things become (in our world where there’s basically no regulation on use of this data).

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October 18th, 2024

23 & Me is spiraling – must venture capital enter the picture?

A friend asked me today what I think about what appears to be the imminent demise of the world’s largest […]

November 3rd, 2020

What if we could live forever?

Thanks very much to the Lockwood-Mathews Mansion Museum for inviting me to speak at their gala. Enjoyed it very much!

October 29th, 2020

Paid in Full?

As subjects are increasingly paid for research with direct challenges to their health, I’m often asked whether or not the […]

October 29th, 2020

Way, Way Beyond Genetics

I was walking back through the impact of 23 & Me on the predictions in Beyond Genetics and found that […]

October 29th, 2020

ResearchGate

I’ve always wondered whether or not Researchgate is worth using but have just let it sit anyway. Here’s mine. The […]

October 29th, 2020

Happy Birthday, American Journal of Bioethics

I couldn’t be happier about the fact that AJOB is 20 years old, just a couple of years older than […]

August 11th, 2016

When A Marketing Firm Predicts that Marketing Will Change Behavior, That Means …

It boggles the mind that there is not uniform agreement that physician behavior is changed by gifts from pharmaceutical companies, […]

May 12th, 2016

My Last Lecture

I was invited to give something called a “Last Lecture” at the University on May 3, 2016. I am not […]

April 14th, 2016

Bioethics and Living Longer or Forever

Are you sure you want to live forever?  I asked this question at the UNH Library Lecture series; here’s a […]

April 14th, 2016

In defense of … university presidents’ salaries?

I say yes, it is time to defend the importance of getting and retaining high quality leaders for the embattled institutions […]